Living with Pulmonary Fibrosis

My husband Bill is in the late stages of pulmonary fibrosis, a lung disease with no known cure. This is our story of our journey through the disease and how it has affected one family's life.

Thursday, September 28, 2006

Working my way through the myriad of agencies that need to be contacted has been a challenge and at times frustrating, and we were pretty organized. I knew everything about our financial affairs, retirement benefits, etc. and the things I am learning still amaze me.

Social Security was a breeze to deal with. The military is another matter. Though they have a casualty office, it is unstaffed, so I have had to try to find out just which agencies to contact and hope that I have found them all. The other company from which Bill drew a pension has been slow, but they seem to be efficient. However, they told me they were cancelling my insurance as of the end of the month when I found out today they actually are supposed to pay the cost of COBRA benefits for 6 months while I transition to another company, in this case Tricare through the military.

A word of caution to anyone in a similar situation - keep good records and don't be afraid to call anyone and everyone and ask what you need to know. One person told me yesterday that Visa and Mastercard sometimes carry insurance on card holders. Mine doesn't but I checked. Some mortgage companies also carry mortgage insurance, which will pay off the balance on a home. I am learning enough to write a book!

Labels: ,

Thursday, September 07, 2006

Bill passed away yesterday morning in his sleep. He was suffering from hypoxia, from the build-up of carbon dioxide in his lungs and blood. His heart was working so hard to function without the needed oxygen. The hospice nurse was able to provide the needed medications to reduce his pain. Once the pain was stabilized, he slept for most of two days. The day before he died he was awake most of the day and lucid. He ate well and seemed reasonably comfortable. I thought he might be gaining strength and might begin to stabilize, but it didn't happen. We are thankful that the end was so easy and our peace about it has been a gift from God.

Labels: ,