Living with Pulmonary Fibrosis

My husband Bill is in the late stages of pulmonary fibrosis, a lung disease with no known cure. This is our story of our journey through the disease and how it has affected one family's life.

Thursday, June 28, 2012

For Julie in response to your comment

Julie, thanks for your comment. I am so sorry to hear about your father. Bill died at home peacefully in his sleep. He was never hospitalized for his pulmonary fibrosis. He was diagnosed six years before his death, but looking back, he had symptoms at least a couple years before that. His general practitioner didn't take him seriously when he said he had a lung problem until he was adamant that he wanted a chest xray. For years his illness was managed with medication. It sounds as if that may not be an option for your father.

Depending on where you live and how the medical community works, your dad may be able to come home with hospice care. He will require someone to be with him constantly, however, once hypoxia sets in. The lack of oxygen to the brain creates hallucinations, and that, in some people, creates fear as well as confusion.

My prayers are with you and your family.