Living with Pulmonary Fibrosis

My husband Bill is in the late stages of pulmonary fibrosis, a lung disease with no known cure. This is our story of our journey through the disease and how it has affected one family's life.

Monday, August 28, 2006

Today we signed up for hospice care. If we had known how quick it is and how much they cover, we would have done it sooner. There is no limit to the amount of time Bill can have care. Medicare covers 100% of the cost and even covers the cost of his medications and his oxygen. He will have visits twice a week and will have a home health care worker to bathe him and help with some of the basics of personal care.

The doctor had briefly mentioned hospice when we were in his office in June, but he didn't say what they would do, nor did he mention that they would provide medication and oxygen. After talking with a friend yesterday about her experiences with her mother, I initiated getting it started.

Labels: , ,