Living with Pulmonary Fibrosis

My husband Bill is in the late stages of pulmonary fibrosis, a lung disease with no known cure. This is our story of our journey through the disease and how it has affected one family's life.

Wednesday, April 20, 2011

Thanks to those of you who continue to follow this blog and who have found the information helpful as you confront your family's issues. One thing I learned through the process is that you must be your own advocate. Study, research, learn and stand up for your spouse/parent/sibling/yourself as you deal with the myriad of doctors and other professionals who are now part of your life. To them, you are the same as the person they saw 10 minutes before and the one they will see in an hour. Ask questions; push for answers and if you don't feel you are being heard, say so. Your loved one deserves the best care possible during this difficult time.

If I can encourage or help in any way, please feel free to contact me.