Living with Pulmonary Fibrosis

My husband Bill is in the late stages of pulmonary fibrosis, a lung disease with no known cure. This is our story of our journey through the disease and how it has affected one family's life.

Thursday, October 27, 2005

October 27, 2005 - Today we were contacted by someone from the Duke University Medical Center. They are conducting a research study to identify a genetic link for pulmonary fibrosis. They are sending a kit that we must take to the doctor for a blood draw and we must release medical records to them. We must also contact family members and find out if they are willing to be tested. If we can help in finding a cure, we are more than happy to participate.

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